Tag Archives: Down Syndrome

Be Open to Yes

To celebrate World Down Syndrome Day (3/21 for three copies of the 21st chromosome), I am sharing a speech I gave at my synagogue during a Jewish Disabilities Awareness and Inclusion event about something I live for: Including people with disabilities. Continue reading

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On a lighter note… (31 for 21)

Someone got a hair cut. Happy middle of Down syndrome awareness month! Not quite 31 for 21. In honor of Down syndrome awareness month, I am posting to this blog nowhere near every day for 31 days to increase awareness … Continue reading

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Be very afraid (31 for 21)

Infuriating. That’s how it feels to be told “No.” In not quite these words, my city’s recreation department said: No, we don’t want your child’s kind. We don’t want to do what it takes to include him in our program. … Continue reading

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Kids are kids (31 for 21)

Check out this two-minute video. It says it all. More Alike than Different Video published on Mar 19, 2015. Created and Produced by Lauren and Paul Costabile.

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October is… (31 for 21)

October is a new beginning. September sucks. Not completely, but September can be truly anxiety producing. School has begun, way too many activities start, and for many of us, there are the important Jewish holidays, which if you do them … Continue reading

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The Words We Use

“He has a disability,” my nephew blurted to my neighbor when we stopped at the corner by her house to say, “Hi.” He was trying to explain why my boy, Raphael, sat in the buggy trailing my bike, while he … Continue reading

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Normal chaos

So this is what it’s like when it’s not like this all the time… That’s what I pondered before falling asleep the night before last. Raphael had been well more than not for long stretches over the past year, so … Continue reading

Posted in Down syndrome, Joy and Pain, Motherhood, Parenting Special Needs, Reactive airway, Sleep Deprivation, Stress | Tagged , , , , , , , | 6 Comments

Our unsung hero – 31 for 21

Having family nearby who help one raise small children is a blessing I know nothing about. But I can tell you what it’s like to have a fairy godmother. And today happens to be her birthday. Tracy has been taking … Continue reading

Posted in Down syndrome, Gratitude | Tagged , , | 1 Comment

News of the day – 31 for 21

Practically every other day, some enlightening insight, funny anecdote or ironic episode pops into my head, and that’s where I “write” a blog post about it: in my head. That means you, faithful reader, don’t get to appreciate the wit, … Continue reading

Posted in Confession, Down syndrome, Parenting Special Needs | Tagged , , , , , , , , | 3 Comments

1 more for “31 for 21”

What does breast cancer, domestic violence, disability employment, bullying prevention, information literacy, cyber security, and medicine abuse all have in common? They, among other causes, are promoting national awareness in the month of October. For me, the most significant awareness … Continue reading

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