Category Archives: Joy and Pain

Be Open to Yes

To celebrate World Down Syndrome Day (3/21 for three copies of the 21st chromosome), I am sharing a speech I gave at my synagogue during a Jewish Disabilities Awareness and Inclusion event about something I live for: Including people with disabilities. Continue reading

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Head games

Euphoric. That was my feeling after Forrest Walker (yes, that’s his real name) treated me post-concussion. His simple touch on my abdomen, chest, thigh and head magically shifted the intangible energy within my body in indefinable ways. A fluid sense … Continue reading

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Keep it from the kids

“How are we going to keep this from the kids?” Greg and I were discussing last week’s massacre of 14 people in a San Bernardino facility that was being used for a holiday party and typically houses a California agency … Continue reading

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Normal chaos

So this is what it’s like when it’s not like this all the time… That’s what I pondered before falling asleep the night before last. Raphael had been well more than not for long stretches over the past year, so … Continue reading

Posted in Down syndrome, Joy and Pain, Motherhood, Parenting Special Needs, Reactive airway, Sleep Deprivation, Stress | Tagged , , , , , , , | 6 Comments


“I have big news to share!” I blurted as we sat down at the coffee shop. “What?” Robyn asked. I hesitated, took a breath, and said excitedly, “Nothing.” My eyes unexpectedly watered, and I held my breath for a minute … Continue reading

Posted in Friendship, Joy and Pain, Motherhood, Stress, Time Crunch | Tagged , , , | 5 Comments

A wedding and a funeral

My father died last week. I still haven’t really cried. That happens sometimes. We just don’t know what we feel, or we’re too busy to feel. Or, we’re not ready to feel. In any case, it still feels crummy. The … Continue reading

Posted in Joy and Pain, Loss | Tagged , , , | 5 Comments

Apples and Honey

A friend I rarely talk to these days messaged me. She said she could tell things were looking up for me. I suppose she meant based on my intermittent Facebook posts – those unwitting barometers of my late-night screen-time zone … Continue reading

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