Category Archives: Family time

Unwasted time

I couldn’t get phone messages all summer. Instead I got annoyed texts telling me my voicemail box was full. Yeah, I know, my phone needed my attention. But it had to compete with activities and hours of planning for my … Continue reading

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Head games

Euphoric. That was my feeling after Forrest Walker (yes, that’s his real name) treated me post-concussion. His simple touch on my abdomen, chest, thigh and head magically shifted the intangible energy within my body in indefinable ways. A fluid sense … Continue reading

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Brotherly love (31 for 21)

The expansive love a new mother feels cannot be described. Perhaps only one who has given birth can get what it’s like to have such tremendous affection for another being. Motherhood increases the capacity of one’s heart so deeply, so … Continue reading

Posted in Advocacy, Down syndrome, Family time, Motherhood, Parenting Special Needs | Tagged , , , | 1 Comment

Apples and Honey

A friend I rarely talk to these days messaged me. She said she could tell things were looking up for me. I suppose she meant based on my intermittent Facebook posts – those unwitting barometers of my late-night screen-time zone … Continue reading

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Something extra: 3/21

Grab This Button TWELVE HOURS, eighteen minutes, and 17 seconds. That’s how much time the countdown clock on the World Down Syndrome Day Web site says there is until March 21, 2012, a day that has been universally established thanks to a … Continue reading

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End of an era

Yesterday, just after midnight, I returned from a quick trip to Florida for my grandmother’s funeral. I feel great. I’m on little sleep and just experienced quite a hectic schedule. Grandma passed on Friday, I published her obituary,  booked travel, and … Continue reading

Posted in Family time, Joy and Pain, Loss | Tagged , , , , , | 2 Comments

A light in the storm

Well, it’s been quite the chaotic December in our home and not just because of extra holiday shopping, cooking, visitors, etc. Shopping exhaustion: Raphael fell asleep in my arms at the big box store (you know the one) and took a … Continue reading

Posted in Family time, Gratitude, Joy and Pain, Parenting Special Needs, Reactive airway, Stress | Tagged , , , , , , , , | 5 Comments