31 for 21: Making strides

We spent more than four hours with specialists at the Sie Center for Down Syndrome at Children’s Hospital Colorado today. There are plenty of follow-up appointments to make, loads of strategies to incorporate, and too much information to process just yet. I need to let it stew.

Meanwhile, I’m replaying some of the day’s finer moments.

Father and son shared a laugh.

Father and son facing each other and sharing a laugh

Raphael surprisingly managed a fork and a bowl and gleefully chewed and swallowed chopped spaghetti and meatballs on his own. (That was truly mind blowing.)

Messy boy eating a bowl of spaghetti and meatballs

The physical therapist, who literally wrote the book on gross motor development for children with Down syndrome, said our boy is very close to walking. (We don’t usually let ourselves believe that imminent things will actually occur any time soon.)

The best news came from one of the world’s leading developmental pediatricians who specializes in Down syndrome. Raphael is doing remarkably well, he said, especially given our son’s extremely challenging start and his illnesses his firt year.

Before I begin on all the new things I now need to do for my son, I think I’ll take a moment for a few gratifying breaths.

Feeling extremely grateful.

In honor of Down syndrome awareness month, I am trying to post to this blog every day for 31 days (or at least 31 times in October) to increase awareness of Trisomy 21, the most common genetic condition that causes the syndrome.

About elizamom

Colorado mother of two small boys. One happens to have Down syndrome.
This entry was posted in Down syndrome, Family time, Parenting Special Needs and tagged , , , . Bookmark the permalink.

2 Responses to 31 for 21: Making strides

  1. Chrisi says:

    Congratulations on the good news. Give yourself a huge pat on the back. Raphael did not get where he is without you.

  2. Deborah Peckman says:

    So happy to hear all the great news on Raphael. Yay! I’m smiling!!!

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